New Zealand Cerebral Palsy Register

Cerebral Palsy Research at Starship Child Health The New Zealand Cerebral Palsy Register (NZCPR)

(National Ethic Approval: HDEC 13/NTA/130)

Background

Cerebral Palsy (CP) is the most common cause of physical disability in childhood, with an approximate international prevalence of 2.0 per 1000 live births. Promisingly, the 2018 Australian Cerebral Palsy Register reports a declining prevalence of 1.4 per 1000 live births in their 2010-2012 birth year period. Most Cerebral Palsy occurs as a result of factors prior to birth, however little is known about these factors and for 80% of people with Cerebral Palsy the cause is unknown. While people with Cerebral Palsy can lead fulfilling lives, having a better understanding on the causes and impact of Cerebral Palsy can help improve the current health services and interventions available.

The New Zealand Cerebral Palsy Register (NZCPR) was established in 2015 and is a coordinated data collection system (confidential database) that will increase our knowledge of people with Cerebral Palsy in New Zealand to help with better planning of health services, compare our practice to overseas experience such as Australia and promote opportunities for research.

The NZCPR has an established national Governance Committee whose purpose is to provide strategic direction and oversight over all the registers activities. To see who the current members of the Governance Committee are, or to get in touch with the register, please follow the link below:
https://nz.cpregister.com/Public/ContactUs

How can a parent or person with cerebral palsy participate in the NZCPR?

 

For Health Professionals

 

Contact details

New Zealand Cerebral Palsy Register website: https://nz.cpregister.com
Email: nzcpregister@adhb.govt.nz Tel: (09) 307-4949 ext.21898
NZCPR: Prof Susan Stott (Chair), Dr Anna Mackey & Alexandra Sorhage, Research Officers

 

NZCPR publications:

 

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