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Review - annual review

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Annual review for children / young people with Cystic Fibrosis (CF) in New Zealand

Key points

Children and young people with CF should be seen by all members of the CF team annually, for a full clinical review of progress over the last year. In tertiary centres this will often occur around the time of their birthday. In smaller centres the annual review may be timed to coincide with a visiting CF specialist clinic.

Infection Control recommendations must be followed for all children with CF. 

If possible all testing should be performed before the annual review appointment. Having the testing and results available before the annual review appointment enables discussion with team members, the child/young person and their family. If there is more than one CF consultant in a team, the child/young person should be 'assigned' to a lead consultant who will be responsible for the decisions in management.

The nurse specialist or clinic nurse will organise and co-ordinate all annual testing. An annual review letter should be made available with comments from all members of the CF team plus all results of annual testing. Copies should be sent to the family, GP and shared care consultants or regional CF team. From 13 years of age, all young people will receive a copy of the annual review letter.

Testing required prior to annual review clinic

Clinic roles

An annual review letter should be made available with comments from all members of the CF team plus all results of annual testing. Copies should be sent to the family, the young person if over 13 years, the GP and shared care consultants or regional CF team. It is the responsibility of the SMO to collate the MDT results and provide the annual review letter. This letter provides the basis for subsequent reviews and any changes made should be highlighted.

All data to be entered into the NZ PortCF database by an identified member / members of the CF team.

Document last reviewed: July 2017

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