Child and Youth Clinical Network for Gastroenterology Services
Purpose of the Network
Established in May 2013, the purpose of this multidisciplinary national Clinical Network is to provide leadership in supporting clinicians working across all healthcare sectors in delivering high quality, cost effective and integrated gastroenterology services for children, young people and their families/whanau.
This will be achieved through a multi-disciplinary approach with the appointment of a national Clinical Reference Group (CRG). The CRG aims to provide advice on service and treatment issues to key stakeholders including the Paediatric Society of New Zealand (PSNZ) and the Ministry of Health (MoH).
In particular, the Network aspires to foster a culture of a nationally coordinated child and youth appropriate gastroenterology services such as:
Development of an infrastructure that supports quality services, safety, equity of service provision and best value use of resources in the clinical arena
Implementation of specific workstreams in key areas, including:
1. Inflammatory bowel disease
2. Neonatal and paediatric liver disease
3. Endoscopy services in children
4. Workforce sustainability planning
5. Nursing and parent educational resources
Development of a system for the monitoring and auditing of services to inform continuous quality improvement
Liaison with national and international bodies with relevance to childhood gastroenterology services
Development of a model of care for gastrointestinal and hepatic illness in children
Establishment of a plan to maximise opportunities to support a workforce education and development.
Engagement with clinicians throughout New Zealand to ensure robust processes, guidelines and support structures are implemented as soon as resources allow.
The national Clinical Reference Group (CRG) includes the following members: Professor Andrew Day, Gastroenterologist/Hepatologist, Christchurch; David Barker, Paediatrician, Dunedin; Helen Evans, Stephen Mouat, Simon Chin, Jon Bishop and Amin Sheikh, Gastroenterologist/Hepatologists, Starship Child Health; John Atkinson, Paediatric Surgeon, Starship Child Health; Sally Jane Lewington and Stephanie Brown, Children's Outreach Nurses, Canterbury DHB; Karyn Sanson RN MHPrac, Facilitator/Operational Project Manager, NZCYCN with specialist and consumer advisors on workstreams.
Jaundiced Baby Referral Pathway and Beware Yellow Resources
Beware Yellow Resources can be downloaded from the IDFNZ website (http://idfnz.org.nz/resources/liver-disease/)
Information on the management of infant and paediatric chronic liver disease
A parent guide on Biliary Atresia
A parent guide on Liver Transplant
A parent guide on Portal Hypertension
A shared care nursing resource on nursing children with liver disease and liver transplant in New Zealand
There are a number of consumer groups who support and advocate for the needs of children, young people and their families with various medical conditions.
Below are the website links to NZ groups relevant to this clinical Network
Kids Foundation for liver disease and transplant http://idfnz.org.nz/resources/about-liver-transplant/
Crohns and Colitis NZ for Inflammatory Bowel Disease https://crohnsandcolitis.org.nz/
Coeliac Disease https://www.coeliac.org.nz/