Million Dollars for Mito
John and Rebecca's baby boy Maddox was diagnosed with Leigh's disease at five months old, a severe, progressive form of Mitochondrial disease.
Maddox sadly passed away on the 17th of November 2015, surrounded by his loving family.
John & Rebecca have built Maddox a huge legacy through the amazing fundraising that they have done to help Starship fight Mitochondrial disease. What they have achieved in Maddox's honour is truly remarkable, and will be life changing for other families living with a child with Mitochondrial disease.
Thank you for your selflessness, enthusiasm and love John & Rebecca, and everyone who has supported Million for Mito, we are truly grateful for your support. #Don'tLetThePowerGoOut
Mitochondria are found in every cell in the human body, except red blood cells; they are responsible for producing more than 90% of the energy that the body requires. They are like the powerhouse for our cells. When mitochondria do not work properly they cannot produce the energy that the body needs, resulting in damaged cells and eventually possible cell death. Depending on where these damaged cells are, determines which parts of the body are affected. There are many forms of mitochondrial disease affecting mainly children but also adults too.
Currently there is no treatment or cure for this cruel, debilitating disease, let's change that.....Mitochondrial Disease - Don't Let the Power Go Out!Rebecca Parker
John and Rebecca are fundraising to help Starship Hospital provide more training, awareness and a hope for a cure for Mitochondrial disease for all of the children and families living with the effects of this disease. Check out some of their incredible fundraisers below!
Fire Fighters Trade Hoses for Sponges in Support of Million for Mito
John Parker with son Maddox, and Area Manager Roy Breeze at Hamilton's/Ngaruawahia's Car Wash
Fire Fighters across the country were out in force on the 19th of September, armed with buckets and sponges and hand-washing cars in support of Million for Mito. Over 20 firebrigades from all across New Zealand teamed together to raise an incredible total of $19,300 for Million for Mito!
To see the family information brochure about Mitochondrial Disease, made possible thanks to 'Million for Mito' click here
To find out more about Maddox and Mitochondrial disease please visit John and Rebecca's Facebook page.
To donate to the Million Dollars for Mito fund please visit John and Rebecca's fundraising page.
More From Starship
A trial programme has just been launched at Starship, which aims to help hundreds of children get off feeding tubes, and learn to eat and drink again.