Child and Youth Cystic Fibrosis Clinical Network

This site does not accept referrals or provide clinical advice in response to questions. If you are a New Zealand health professional seeking clinical advice, please use your local clinical pathway. If you are a New Zealand child patient, parent or caregiver seeking clinical advice, please contact your usual doctor. You can read the full site disclaimer here.

Purpose of the Network

The purpose of this Clinical Network (CN) is to support all multidisciplinary teams who work across primary, secondary and tertiary services, to deliver best practice care in the treatment of cystic fibrosis. The network will work closely with Cystic Fibrosis NZ and PSNZ Respiratory Special Interest Group. Read more...

Cystic Fibrosis New Zealand Referral Form

Cystic Fibrosis New Zealand (CFNZ) is a not-for-profit organisation which provides support and advocacy for families living with cystic fibrosis. Please use this link to the referral form to ensure families have full access to the facilities and support provided by CFNZ.

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• Antibiotic allergy in Cystic Fibrosis

• Dermatological involvement with Cystic Fibrosis

• Infection Control Recommendations

  Prevention of cross infection in people with Cystic Fibrosis (CF) through patient to patient transmission or indirectly from the environment. Includes infection control practices for enteral feeding, infection control in both inpatient and outpatient setting as well as other recommended practices for children and young people with CF

• Information and handouts for Families

  Includes information for families with newly diagnosed infants

• Investigation of respiratory physiology

• Non-infective respiratory complications in Cystic Fibrosis

• Nutrition care and management of Cystic Fibrosis

• Other complications of Cystic Fibrosis

  Including ocular, dental and neurological problems associated with cystic fibrosis

• Referral for Lung Transplant Assessment

• Renal complications in Cystic Fibrosis

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